The Medical Foods Equity Act Platform

National PKU Alliance
 One of the session presentations made me appreciate how the ADA is supporting a very personal live saving bill which is The Medical Foods Equity Act – “Reducing Health Disparities”.  Two incredible brave women from the National PKU Alliance – Christine S. Brown – Executive Director and Kristen Vanagas – Advocacy Volunteer spoke about the challenges that they have raising PKU children and what this bill can help children and adults with this illness.  Both of theses ladies had astonishing stories to tell but one in particular that stuck in my mind was the woman who could not afford to purchase the medical foods.  Her health deteriorated so rapidly that once she was able to receive the medical foods she could not function the same as she did before. 

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